Monday, April 21, 2014

Ups and Downs...

This weekend was rough!!

Like I wrote about in my last post, Sophie's blood culture came back negative last week. At that point, we thought she was free from infection. On Friday night, she started acting a little funny, was having more alarms, and her nurse said her belly had grown a little bit (they measure it each day, or more if they are concerned about a belly infection.) When I got to the hospital on Saturday, Sophie was acting very lethargic and cranky (not like herself!) and, to make a long story short, the doctors ordered more blood cultures and labs, which came back positive for an infection, so she was started on some more antibiotics. They also ordered abdominal xrays every 6 hours to check for a serious belly infection. The first xray was questionable, but the rest looked okay. Because the blood cultures were positive (which means Sophie has a blood infection), their standard is to do a spinal tap to see if she has meningitis. I knew this was a possibility, but I totally did not want my kid to have to go through a spinal tap. When they ordered it, I sort of fell apart! It only took about 10 minutes total, and Sophie was so brave! Now that it's over, I know that it really wasn't that bad, but it was so hard for me when she had to go through it!

Sophie isn't acting like she has meningitis, which the spinal tap would look for, but we are waiting for the culture results to come back to be sure. Her xrays have looked good, so they've ruled out the serious tummy infection we were worried about. Thank goodness! Yesterday and today, she has been acting much more like herself. She's on antibiotics, and the doctors are going to continue them for a full course no matter what. The antibiotics are treating the blood infection, but if she does have meningitis, they will treat that as well. They've restarted her feedings; hopefully she'll be back on her full feedings soon!

Evie is doing great. She has a little bit more of a reflux/spit-up problem than Sophie, but nothing we can't handle!

Last night, Evie weighed 4 lb., 3 oz., and Sophie weighed 3 lb., 9 oz.

Today was much better than the weekend. Sophie is acting like her normal self, and her labs are coming back down to normal. Sophie and Evie's nurse let us put Evie on a transport monitor this afternoon and bring her next door to Sophie's room. It was like a family reunion! We had such a great time having the girls together... they pretty much slept the whole time, but we know they knew they were together! Each of the girls also got to practice nursing today, and each took a WHOLE feeding by bottle! Woo hoo! They also both got dressed in cute preemie clothes and we talked about weaning them to open beds (working on maintaining their temperature all by themselves so they don't have to be in the enclosed isolette all the time). It is a slow process, but we are going to start working on it soon!

Evie and Sophie enjoying each other's company

Our first family pic :)

So adorable. I can't stop staring at this picture!
Normally we feel guilty leaving the hospital early, but we got plenty of quality time in today, and the girls needed to rest. Since today went so well and the girls were both having great days, Nate and I decided to have a nice night to ourselves (and here I am writing a blog post, and thinking about calling the nurse soon to see how the girls are doing). We will be there bright and early again in the morning!

Please keep praying that Sophie's infection will clear and not return! The blood cultures will be repeated in the morning; please pray that they are negative, and that neither of the girls will catch any more infections! And, most importantly, please pray that we will be able to take our girls home ASAP! We absolutely cannot wait!

Love,
Nate, Sara, Evelyn Joy, and Sophie Grace

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